Join us for a beautiful walk around Lake Alexander, in honour of those we've lost, to celebrate the survivors, and to give hope and courage to those currently fighting brain cancer and each other.
"4am 27th of September 2018 is when my whole world got turned upside down. I was in bed and felt like I had just woken up. Turns out I had just had a seizure - two paramedics and one worried Tom (partner).
That morning got a CT scan then was taken to RDH (Royal Darwin Hospital) for an MRI. Turns out I had a massive tumour (size of a golf ball) on my left hand frontal lobe in my brain. Another one on the right but must of been a lower grade due to the difference in brightness on the scan.
Surgery was on the cards. Went in with a positive mind and a determination to beat the terrible odds. Came out and recovered well - surgeons were happy with how the operation went. Said I could go home and see my family if I wanted to - got results back and they had said it was a Grade III – Anaplastic Astrocytoma. I decided to fly down to Victoria and see my family. Came back to Darwin and got my MRI scan. It had GROWN BACK within 3 1/2 weeks!
Safe to say, I was absolutely heart broken!
They sent it down south for more testing as a Grade III shouldn’t grow back that fast - yep, as suspected Grade 4 GBM (the worst one) Round two of surgery before radiation and chemotherapy. Second surgery got me goooooddd I have never been so weak and emotional in all my life. Thankful that I didn’t lose my sight, hearing and walking ability.
Trust me when I say - no one can ever prepare you for a diagnosis of Cancer! This 26 year old is too young to die!! One minute you are happy as Larry, living your ‘best life’ and the next minute your world is upside down and there is nothing you can do about it. People just say “live your life” & “have fun” it’s all well and good to say but it’s so overwhelming when someone gives you a window of life.
6 weeks of Chemotherapy and Radiation at the same time. Once that was complete, scans have shown that I have another tumour (fairly small but hey, a tumour is a tumour) this one is located at the back of my head.
I was praying for no more surgery and they have decided to go a head with the original plan and continue with chemo and check the scan in 3 months time to see if anything has improved. I would love the opportunity to be able to create awareness and raise as much money as possible for this horrible illness! Fundraisers are at the heart of what Cure Brain Cancer Foundation do are integral to helping to achieve their mission: to increase five-year survival to 50 per cent by 2023. Let’s do this!
- Sarah Boyd, organiser of Walk4BrainCancer Lake Alexander
Date | Saturday 16 March 2019
Registration | 8am
Start | 8.30am (daylight saving time)
Merchandise | Personalised and classic 2018 Walk4BrainCancer shirts are on sale via the online store! Alternatively head to our merchandise page to purchase W4BC caps, thermo water bottles and other items before this walk.
Register your family and friends
You can purchase your Walk4BrainCancer Lake Alexander tickets, along with your family and friends to show your support.